So Close to Death Yet So Far Away: P.O.T.S.

I suffer from pots syndrome and chronic fatigue syndrome and I feel like my life is just existing in bed alone. I would listen to this audiobook every night and it would give me hope and made me feel good that I could relate to the authors Journey through this illness. I'll be read listening to this at least three or four times :-) thank you Derek for writing this!

This is a very rough book. I needs lots and lots of editing help. It's also a little on the vulgar side. All that being said, I'm proud of the author for putting it out there, and it did me a lot of good because it helped me not feel so alone since I have POTS too.

I loved how this book not only talked about the authors experience with P.O.T.S but also others experience as well. I too suffer from P.O.T.S and I could connect so well with how he explained the difficulty of being diagnosed. I am definitely sharing this with my potsie friends!

This book gave an excellent example of a young person experiencing postural orthostatic tachycardia syndrome and how their life changed.

Finally a book about my disability

I was fortunate to receive a free Audible code, no promises of a review required.Invisible Illnesses exists more than anyone may realize. I being one who suffers from at least one. I live with RSD (reflex sympathetic dystrophy) also known as CRPS (complex regional pain syndrome) The best way to describe it is we feel like someone has poured gasoline into our veins and lit it on fire. a hug, a gentle spring breeze, clothes and a shower are all things that can produce a flare that would be wished upon no one. It is Difficult to attend a movie due to surroundsound & vibrations. You also end up pretty much staying in your home the fear of people running into you touching you in the wrong places are overwhelming. Going to hospitals are not the place to go for help anymore for the pain, they treat you like your drug seeking. Even had a friend that came to visit from another state who also suffered from it as well,ended up at the hospital twice on the third, she was told if it bothered her that much being here to go home! It too is a disease that many do you not know about or understand including the medical profession, it has been around since the Civil War and still can take months to years to be diagnosed.P.O.T.S is a disease I knew nothing of until a brother of a fellow RSDer was diagnosed with it .because the mother had done the research. This author I believe did a phenomenal job in getting information out there that is needed so much I know that the one I live with is also called the suicide disease I don’t want to tell you how many I know I’ve lived that name. There is no cure and no real treatment. And it’s true what keeps us going are the ones that do you support us and the groups that we are suffers can get together and even if on line. So please be gentle before you make comments, just because it is not something you can see it doesn’t mean it doesn’t exist.

This was a very good book. We learn from a sufferer about his invisible disease,POTS,and how it has affected his life.Very interesteing.Eddie Leonard Jr was a fine narrator.I was given this book by the narrator,author or publisher free for an honest review.

My daughter has POTS. Some grammar errors but great concept. Glad to see someone write a book to bring awareness.

Needs proofreading the interviews of the suffers.Derek paints a picture of recovery and how he continue a normal life despite PoTS, those he interviewed are not coping with everyday life. Their stories are in stark contrast to Derek`s.He could had drawn on the interviews, how treatment approach vary across the World.Interviewed someone who considered themselves `cure`.